When Caring for Mom Becomes a Battle of Wills

When I'm sitting here writing posts for the blog, I often keep the Facebook Reels open in the background. Sometimes it's entertainment. Sometimes it's noise. And every once in a while, I come across something that hits surprisingly close to home.

Tonight, it was this Reel:

https://www.facebook.com/share/v/1Gg6CPpZ9D/

As I watched it, I thought, I'm experiencing something similar.

I've written before about my mother and her time in a skilled nursing facility. I've also mentioned that she wants to move into an assisted living facility.

After 56 years, she's had enough and wants some time away.

Meanwhile, I'm thinking about a different kind of change in my own life. My plan is what I call 6+6 — part of the year in the United States and part of the year in Thailand.

But before any of that happens, there are much more immediate decisions to make.

Assisted Living Isn't Free

Assisted living facilities cost money.

A bunch of money, I anticipate.

This week, I'm touring two assisted living facilities. I want to see what's available, understand what they provide, ask questions, and, of course, find out what everything actually costs.

Then comes the question of how to pay.

That's where things get complicated.

I have Power of Attorney over my mother's assets, which allows me to handle her financial matters and use her assets to pay for her care.

There's one problem.

My father has voluntarily declined to provide me with information about my mother's employer 401(k).

And that has created what may become a battle of wills.

Living Under the Same Roof Without Talking

I haven't spoken to my father in more than a week. It might be closer to a week and a half now.

Here's what makes the situation even stranger:

I still live in the house my parents both own.

My room is on the second floor.

Yet I haven't spent much time at home lately.

There has been dialysis. There have been visits with Mom. There have been recovery meetings. And I've been trying to find some fun somewhere in between it all.

Today was the exception.

Today, as I wrote in another post, my body essentially told me that I wasn't getting out of bed.

So I didn't.

I spent the day upstairs.

There is something sad about being in the same house as someone and having that much distance between us.

The Last Holdout

The entire situation is sad.

From my perspective, my father has gradually alienated the nuclear family.

For a long time, I was the last holdout.

I kept trying.

Now I'm reaching a point where my primary concern isn't winning an argument or proving who is right.

It's figuring out what happens next for Mom.

She has said what she wants.

I have two assisted living facilities to tour this week.

I need to understand the costs.

I need to understand the resources available to pay those costs.

And somewhere in the middle of all of this is a 401(k) that I still don't have information about.

So that's where this story stands tonight.

Mom wants assisted living.

I'm preparing to tour the facilities.

I'm thinking about my own eventual 6+6 life between the United States and Thailand.

My father and I aren't speaking.

And we're still living under the same roof.

Families can be complicated.

Money can make them even more complicated.

Add aging parents, caregiving, decades of marriage, Power of Attorney, retirement accounts, and decisions about where someone wants to live, and suddenly life starts producing storylines that even the Facebook Reels would have trouble making up.

Follow along to find out what happens next.

I have a feeling this chapter isn't finished.

Some Days Moving Forward Means Staying Still

In a previous post, I wrote about visiting my mother in the skilled nursing facility—spending time with her, seeing what her days are like there, and trying to navigate everything that comes with figuring out what happens next.

Today, I was supposed to visit again.

My body had other plans.

Today my body said, “I'm not getting out of bed.”

And I listened.

I didn't finally get out of bed until about 5:30 p.m. Eastern Time.

I was awake earlier in the day, and once I realized I wasn't going to make it, I messaged the family group text. I let everyone know I wouldn't be there and asked if the brother who was in the area could let Mom know.

They were there hanging out with her, so she wasn't alone.

Still, I felt like I was missing something.

I didn't get to hear from Donna Woods today—or try to keep up with Donna Woods. That's become part of these visits, too. There are the people I originally go there to see, and then there are the people I meet along the way who somehow become part of the story.

And that little community around Mom may be changing this week.

Her current roommate, Jenny, might be leaving tomorrow. If she does, Mom may be getting a new roommate.

Donna Woods may be leaving on Tuesday.

It's strange how quickly these temporary communities form. People enter a skilled nursing facility because something happened in their lives. They become roommates. They sit in the same hallways. They eat meals together. Families begin recognizing one another. Personalities emerge. Stories get shared.

Then someone gets better.

Someone moves.

Someone goes home.

Someone new arrives.

And the little world rearranges itself again.

Maybe that's part of what I've been watching while visiting Mom: life continuing to move even when, from the outside, it can look like everyone is standing still.

Today, I was the one standing still.

I always feel some guilt when I don't make it to see Mom. I want to show up. I want to be involved. I want to keep things moving forward.

But sometimes my body gets a vote, too.

Today it apparently had veto power.

So I stayed in bed.

Tomorrow begins another week, and it's time to push ahead again.

On Tuesday, I'm touring an assisted living facility as we continue exploring what the next chapter might look like for Mom.

The timing feels especially interesting now.

Jenny may be leaving.

Donna Woods may be leaving.

Mom may have a new roommate.

And I'm going to walk through a completely different place and try to imagine whether it could eventually become Mom's next home.

I’m not sure this facility is the right one. I don't know what Tuesday will bring. There are still questions to ask, things to see, decisions to make, and probably a few surprises nobody has thought about yet.

But that's where things are today.

Yesterday's plans change.

Roommates come and go.

People recover and move on.

Some days I visit Mom.

Some days my body tells me I'm staying in bed until 5:30 p.m.

And then another week begins.

So I get up, push ahead, and take the next step.