Mom Is Making Progress—and Apparently I’m Her Husband Now

This morning after dialysis, I went to visit Mom at the skilled nursing facility.

When I got to her room, she wasn't there.

That's actually a good thing.

She was doing rehab.

I was told that Mom is making progress, which was great to hear. She still needs someone blocking her left leg because it continues to buckle, but progress is progress.

After everything that's happened, I'll take it.

Eventually, Mom made her way back to the room.

And that's when today's visit took a turn I wasn't prepared for.

There's a New Roommate

Mom got a new roommate on Saturday.

Her previous roommate, Jenny, left last Monday. I don't know the name of the new roommate yet, but I do know that she broke her hip, had surgery, and is now there recovering.

The new roommate came into the room while I was there.

There was some banter.

I'm not particularly good at banter, but I participated.

She mentioned that she's also hard of hearing, so apparently Mom and her new roommate already have something in common.

Everything was going fine.

Normal conversation.

Normal skilled nursing facility visit.

And then she looked at us and asked a question:

“Is that your husband?”

Excuse me?

I'm sorry.

What?

GROSS!!!!

I believe there are moments in life when the human brain protects itself by temporarily refusing to process information.

This was one of those moments.

Of all the possible relationships she could have guessed...

Son?

Nephew?

Relative?

Friend?

Random bald guy who wandered into the wrong room after dialysis?

Nope.

Husband.

I guess...Good for Mom?

Once I recovered from the initial trauma, I had another thought.

I guess that's a compliment to Mom?

Maybe?

Apparently, she looks young enough to be my husband.

Good for her.

Unfortunately, that means the other half of the equation is that I apparently look old enough to be married to my mother.

Not good for me.

I'm choosing to focus on Mom's rehab progress instead.

She's working.

She's improving.

Her left leg still needs support, but she's moving in the right direction.

She has a new roommate.

And apparently, sometime between dialysis and walking into the skilled nursing facility, I aged several decades.

Anyway, I'll be back.

I need a few minutes to clean the vomit out of my mouth.

Then maybe I'll introduce myself properly to the new roommate.

“Hi. I'm Niel. Her SON.”

Let's make sure we've got that established early.

After Dialysis, Assisted Living Tours and Complaints: I Need the Ocean and Bacon

Today was one of those days when my internal battery was already flashing red before I walked through the door.

After dialysis, I toured The Palms, an assisted living facility I'm considering for Mom.

Today's dialysis was a little more difficult than Monday's. By the time everything was finished, I didn't even make it to my recovery meeting.

Instead, I had another mission:

Deliver Mom's dinner.

Ham, grits, and peas.

Gross.

I'm sure someone loves that combination. That someone is not me.

So, after dialysis and touring The Palms, I headed over to the skilled nursing facility with Mom's meal.

And then the complaining began.

Apparently, Everything Is Terrible

It was nonstop.

The food.

Physical therapy.

Nursing.

This.

That.

Something else.

At times, Mom was saying things that, from my perspective, didn't line up with what had actually happened. I've experienced that before with both of my parents, and today I didn't have much energy left to sort through what was accurate, what was frustration, and what might have been something else entirely.

I could feel myself reaching my limit.

That's when H.A.L.T. popped into my head.

Hungry.

Angry.

Lonely.

Tired.

I was feeling three out of the four.

I'll let everyone guess which three.

Actually, don't think about it too hard.

The important part was recognizing what was happening before I allowed myself to get dragged into an argument that wasn't going to accomplish anything.

See You Tomorrow

I finally told Mom I was going to leave and that I'd see her tomorrow.

Tomorrow, I'm touring another assisted living facility.

Her response?

“Don't come.”

My response?

“See you tomorrow.”

At this point, it felt less like a discussion and more like defiance.

Ugh.

Yesterday, I wrote about needing to establish boundaries. Today was another opportunity, actually, to practice one.

I didn't argue.

I didn't address every complaint.

I didn't stay there until I was completely exhausted and angry.

I left.

Sometimes that's the healthiest option available.

I'm Still Doing the Work

The frustrating part is that behind all these conversations, I'm still trying to do what Mom has said she wants.

She wants assisted living.

So I'm touring assisted living facilities.

I'm looking at rooms.

I'm learning about services.

I'm figuring out costs.

I'm asking questions.

I'm trying to imagine what her life might look like in each place.

Then I walk into the skilled nursing facility and hear complaint after complaint about the place she's currently living.

I understand that she's frustrated. She's been through a lot.

But I've been through a few things myself.

Today alone started with dialysis, moved into an assisted living tour, and ended with me delivering ham, grits, and peas while listening to a review of practically every department in the building.

Eventually, the tank is empty.

Mine was empty.

So I went home.

Tomorrow, I'll get up and do it again.

Another facility.

Another tour.

Another visit with Mom, regardless of today's “don't come.”

And hopefully another reminder to myself that I don't have to solve everything in one day.

I Need the Ocean and Bacon

Fortunately, I have something waiting for me at the end of October.

I'm going on a cruise.

And after the last few weeks, I think I've identified exactly what I need:

The ocean and bacon.

Lots of ocean.

An unreasonable amount of bacon.

Maybe I'll sit somewhere, looking out over the water, holding a plate stacked with bacon and doing absolutely nothing for anyone.

No assisted living tours.

No skilled nursing complaints.

No ham, grits, and peas.

No problem-solving.

Just me, the ocean, and enough breakfast meat to concern a cardiologist.

But first, tomorrow.

Another assisted living facility.

Another visit with Mom.

Because even when she says, “Don't come,” sometimes I know what she really needs is for me to keep showing up.

So...

See you tomorrow, Mom.

When Helping Mom Means Setting a Boundary

This afternoon, I got frustrated with Mom.

Really frustrated.

It was lunchtime at the skilled nursing facility, which meant it was also time for one of Mom's favorite activities whenever she's in an institutional setting:

Complaining about the food.

Her favorite word seems to be “terrible.”

She uses it a lot.

More than a lot.

Today, though, the frustration wasn't just about whether lunch deserved another terrible review.

While Mom ate, I stood in the hallway when one of the CNAs approached me. She brought up several concerns.

Mom isn't eating enough. She wants to go to sleep immediately after eating, even though she's been told she needs to remain upright for at least 30 minutes. Her stomach hasn't really settled since her second stroke. She's also frustrated because she says it sometimes takes too long for someone to respond after she pushes the call button.

There may have been a few other things mentioned that I'm forgetting.

I understand the complaints individually.

Put them all together, though, and I started getting frustrated.

What Does Mom Actually Want?

We've talked about this before.

Mom doesn't want to go home. She wants to leave skilled nursing and eventually move into an assisted living facility.

I'm touring two assisted living facilities this week to help make that happen.

But I explained something to her again today: moving to another facility won’t necessarily solve everything she doesn't like about this one.

There will still be other residents.

Staff will still care for multiple people.

There will still be menus she doesn't control.

There will still be times when she pushes a call button, and someone doesn't magically materialize next to her bed.

That's part of the compromise that comes with choosing a facility over living at home.

At home, she could have significantly more control over what she eats, when she eats, when she goes to bed, and many of the other things she's frustrated about now.

She doesn't want that option.

I respect that.

But choosing another option means accepting compromises.

And that's where we weren't getting anywhere today.

I'm Not Going to Chase the Impossible

I finally told Mom something that may have sounded harsh.

I'm not going to put in all the work required to find another facility, arrange everything, deal with the finances, move her, and get her settled somewhere else if we're going to repeat the same cycle.

New building.

New room.

New staff.

New food.

Same word:

“Terrible.”

I'm willing to help her find a place where she's safe, comfortable, and treated well.

I'm willing to tour facilities.

I'm willing to ask questions.

I'm willing to work through the financial issues.

I'm willing to help her get where she says she wants to go.

I can’t guarantee she’ll like everything.

No facility can do that.

I Had to Remove Myself

Eventually, I realized the conversation wasn't accomplishing anything.

I was frustrated.

She wasn't changing her position.

I wasn't changing mine.

Continuing the conversation would only make both of us more upset.

So I told her that I needed to remove myself from the situation.

That's a boundary I need right now.

There is a difference between helping someone and taking responsibility for making them happy.

I can help Mom.

I can't manufacture happiness for her.

And I can't keep running from facility to facility looking for a place where absolutely everything will be exactly the way she wants it.

Then There's the Money

There's another practical reality.

Assisted living costs money.

Potentially a lot of money.

If Mom is going to be unhappy regardless of where she lives, I have to ask a difficult question:

Why spend a significant amount of her money changing locations if the result will be the same dissatisfaction?

That's where my mind went today.

If she's going to be unhappy in assisted living and unhappy at home, then financially, being unhappy at home is considerably less expensive.

That doesn't mean I've decided she needs to go home.

It doesn't mean I'm abandoning the search.

I'm still touring the facilities this week.

But I am starting to recognize that finding Mom a new place to live and finding Mom a place where she'll never complain are two completely different assignments.

I can work on the first one.

The second one isn't mine.

Today, I needed to remind myself of that—and walk away before frustration took over the conversation.

Tomorrow is another day.

And apparently, somewhere out there, I still need to find a facility whose food doesn't earn the word “terrible.”

Wish me luck.

Some Days Moving Forward Means Staying Still

In a previous post, I wrote about visiting my mother in the skilled nursing facility—spending time with her, seeing what her days are like there, and trying to navigate everything that comes with figuring out what happens next.

Today, I was supposed to visit again.

My body had other plans.

Today my body said, “I'm not getting out of bed.”

And I listened.

I didn't finally get out of bed until about 5:30 p.m. Eastern Time.

I was awake earlier in the day, and once I realized I wasn't going to make it, I messaged the family group text. I let everyone know I wouldn't be there and asked if the brother who was in the area could let Mom know.

They were there hanging out with her, so she wasn't alone.

Still, I felt like I was missing something.

I didn't get to hear from Donna Woods today—or try to keep up with Donna Woods. That's become part of these visits, too. There are the people I originally go there to see, and then there are the people I meet along the way who somehow become part of the story.

And that little community around Mom may be changing this week.

Her current roommate, Jenny, might be leaving tomorrow. If she does, Mom may be getting a new roommate.

Donna Woods may be leaving on Tuesday.

It's strange how quickly these temporary communities form. People enter a skilled nursing facility because something happened in their lives. They become roommates. They sit in the same hallways. They eat meals together. Families begin recognizing one another. Personalities emerge. Stories get shared.

Then someone gets better.

Someone moves.

Someone goes home.

Someone new arrives.

And the little world rearranges itself again.

Maybe that's part of what I've been watching while visiting Mom: life continuing to move even when, from the outside, it can look like everyone is standing still.

Today, I was the one standing still.

I always feel some guilt when I don't make it to see Mom. I want to show up. I want to be involved. I want to keep things moving forward.

But sometimes my body gets a vote, too.

Today it apparently had veto power.

So I stayed in bed.

Tomorrow begins another week, and it's time to push ahead again.

On Tuesday, I'm touring an assisted living facility as we continue exploring what the next chapter might look like for Mom.

The timing feels especially interesting now.

Jenny may be leaving.

Donna Woods may be leaving.

Mom may have a new roommate.

And I'm going to walk through a completely different place and try to imagine whether it could eventually become Mom's next home.

I’m not sure this facility is the right one. I don't know what Tuesday will bring. There are still questions to ask, things to see, decisions to make, and probably a few surprises nobody has thought about yet.

But that's where things are today.

Yesterday's plans change.

Roommates come and go.

People recover and move on.

Some days I visit Mom.

Some days my body tells me I'm staying in bed until 5:30 p.m.

And then another week begins.

So I get up, push ahead, and take the next step.

The Power of Attorney Is Signed: Welcome to My Real-Life Version of The Traitors

Well, we have an update.

If you read my previous post about caring for my mother, money, control, and family boundaries, you know we’ve had some difficult conversations about what happens next.

My mother has made her wishes known. I’ve been working on making sure those wishes are heard and respected.

Now, there’s a new development:

I have a signed South Carolina Power of Attorney.

Yep.

The paperwork is signed.

The next step?

I need to give my father a copy.

And then we see what happens.

Previously, on NielFlamm.com...

In the last episode, my father and I had some very different views about my mother's money and how it should be used for her care.

When I asked about accessing information concerning money she had earned and saved, I heard:

“I’ll think about it.”

Later, I heard:

“Prove it.”

Well, I didn't exactly set out to turn this into a cliffhanger, but here we are.

The Power of Attorney is signed.

Now comes the part where I hand him a copy.

Cue dramatic music.

This Isn't 90 Day Fiancé

I've been trying to figure out exactly what kind of reality show my life has become.

It's definitely not 90 Day Fiancé.

Nobody is getting a rose, so The Bachelor is out.

I'm thinking we're getting closer to a real-life version of The Traitors.

We've got family.

We've got money.

We've got disagreements.

We've got questions about who controls what.

We've got people wondering what someone else will do next.

And we've got me standing in the middle of it thinking:

How did I get cast in this show?

Unfortunately, unlike reality television, nobody yells “CUT!” and sends everyone back to their trailers.

This is real life.

What Happens Next?

That's the interesting part.

I don't know.

I'm going to give my father Power of Attorney and see what happens next.

Maybe the document changes the conversation.

Maybe it doesn't.

Let’s move forward with figuring out my mother's finances and how her resources can support the care she wants.

Maybe we're headed for another episode.

Whatever happens, my objective remains the same: listen to my mother and advocate for what she wants.

The Power of Attorney isn't the finish line. It's another step in a much bigger process.

Stay Tuned

So that's today's update.

South Carolina Power of Attorney: signed.

Copy for Dad: next.

Dad's reaction: TBD.

And apparently, that's my teaser for the next episode.

Keep coming back to NielFlamm.com/blog because I have a feeling this story isn't finished.

Forget 90 Day Fiancé.

Forget The Bachelor.

Welcome to my real-life version of The Traitors.

Except there's no cash prize at the end.

Just family, paperwork, boundaries, and hopefully doing what's best for Mom.

Stay tuned.